My son Robbie Gordon, who has died aged 37, due to uncontrolled seizure activity, had a unique personality, and distinctive strengths and abilities. Robbie had a very rare condition known as Dravet syndrome, with epilepsy, profound learning difficulties and autism. He experienced difficult times that would have floored many of us, but always came out smiling. His internal strength and robustness…
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https://hiccupsandkicksuk.tumblr.com/post/675190320088137728
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